Timo is a patient with diffuse TGCT of the knee living in Germany. Timo has had 6 surgeries, 2 radiosyonvectomies, and been on systemic therapies. He has watched the landscape of the disease and treatments change in real-time, all while fighting a disease that wasn't entirely understood. Timo shows us what it means to be #TGCTStrong by sharing his story. This is a must-watch!
Anne's Misdiagnosis story
Anne Kable was diagnosed in 2019 with tenosynovial giant cell tumor which was confirmed by pathology after surgery. However, Anne was told she had “giant cell tumor” leading to it being treated as giant cell tumor of the bone. After several recurrences and denosumab treatment, she joined the GCTB and TGCT Support groups where she learned she was likely receiving treatment for a disease she did not have. Through self-advocacy, Anne has established a new treatment plan and is empowered by the fact that she is at the helm of her health now. We are so grateful Anne is sharing her story and she hopes this educates others and prevent this from happening again.
Andi's story
Andi is an amazing German filmmaker who was diagnosed with diffuse TGCT of the ankle. Andi found her way through a clinical trial and now monitoring her TGCT. She enjoys life at every instance she can and we can't help but feel her hope and bravery through the screen!
Our story at OSU
Yesenia's Story
Yesenia was diagnosed with tenosynovial giant cell tumor (TGCT) of the hip leading to multiple surgeries and clinical trials. Yesenia recently had a revision surgery for her replacement. Here is her TGCT story of bravery, resilience, and positive outlook. Filmed and edited by Amie Song (https://amiesong.net/)
Gary's Story
Gary was diagnosed with tenosynovial giant cell tumor (TGCT) leading to multiple surgeries. Gary is currently on Turalio. Here is his TGCT story of willpower, resilience, and fighting-spirit. Filmed by Gary Sather Video Edited by Sydney Stern
Joe's story
Joe Pleban is an adaptive border cross on the 2021-2022 US Paralympic team. He was diagnosed with tenosynovial giant cell tumor (TGCT) ultimately leading to a below knee amputation. Here is his TGCT story of willpower, determination, and a bit of powder! A Cam Sales Film with TGCT Support Filmed by Cameron Sales (camsalefilmdept.com) Edited by Kevin Hoffman (www.kevinhoffmann.com) Cheer Joe on at this upcoming Paralymics: https://www.joepleban.com/
demi's story
Demi Chalkias is a performance and racing driver (2020 Pirelli GT3 CASC Champion🏆, 2018 Pirelli GT4 CASC Champion 🏆). She was diagnosed with tenosynovial giant cell tumor (TGCT). However, that hasn't stopped her from reaching her goals on and off the track, through strength, grit, and determination! An ihavenoidea. production with TGCT Support Directed by: Avery Wilton Composition by: ANTI AD: Brianna Orange Location provided by: RClub For more from Demi, go to: www.demiracing.com/
