TGCT Support is a community open to patients with TGCT (previously called PVNS), their caregivers and family members. It is also open to physicians, researchers, and others interested in learning more about TGCT and helping those with the disease. Joining the community is free! We want to come together to share medical experiences, provide each other with support, and share tools to guide you through your TGCT journey. Most importantly, we are here to ensure that no one faces TGCT alone. If you have any questions or difficulties with the forms, please feel free to contact us at [email protected].
Community Benefits: For patients, caregivers, and their families:
Access to newsletters which provide the latest information and education about TGCT and its treatments.
Free personal consultations about TGCT management, clinical trial navigation and other areas.*
Curate and individualize questions for your doctor visits based on your unique scans, reports, and experience.*
Connection with other TGCT patients and caregivers through support groups and our virtual community group, available both throughout the U.S. and internationally.
Answer your questions related to diagnosis, treatment, and facilitate care.*
Assistance navigating insurance, healthcare systems, and providers for optimal TGCT management and monitoring.*
Assistance with the insurance appeal process and referral to expert specialists globally.
Access to a TGCT Mentors who helps patients and their caregivers through their TGCT journey.
For physicians, researchers, and others interested in learning about TGCT:
Access to newsletters which provide the latest information and education about TGCT and its treatments.
Access to webinars that provide valuable information about TGCT care, treatment, and research, including some by members of our TGCT Team.
For physicians, an opportunity to be listed in our directory ofTGCT Specialists.
If you have any problems filling out your form, or have any questions, please contact us at [email protected].
Privacy Our primary concern is the privacy of our members. TGCT Support does not send information that might be considered private to anyone outside of the group. To help ensure that goal, we restrict community membership in our community to TGCT patients and caregivers.
Disclaimer *We are patients and advocates, not doctors. Any information shared among the group should not be construed as medical advice and is not intended to substitute discussion with your doctor.
