TGCT Support

Your new home for TGCT support and information

"TGCT Dimmed my world in ways i couldn’t explain. AWARENESS and community brought the light back and showed me i was never meant to walk this path alone"
-Olivia Meyer, LIVING WITH TGCT SINCE 2023

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WHAT IS TGCT?

Also known as pigmented villonodular synovitis (PVNS) and giant cell tumor of the tendon sheath (GCT-TS)
Tenosynovial Giant Cell Tumor (TGCT) is a type of rare, locally aggressive, non-life threatening, tumor of the joint, tendon sheath, or bursa.

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TGCT Stats

A 2017 Danish study found that of 44 per 100,000 people are living with localized TGCT and 12 per 100,000 people are living with diffuse TGCT (7). Whereas, a 2017 Dutch study found 43 people per million are newly diagnosed with TGCT; 29 cases per million of localized TGCT affecting fingers and toes, 10 cases per million of additional localized TGCT in other locations, and 4 cases per million of diffuse TGCT (5).

CASES OF TGCT PER
MILLION PEOPLE

SUBTYPES

The mission of TGCT Support is to enhance treatment options and quality of life for TGCT patients through patient-powered research, education, empowerment, and global advocacy efforts.

Your donations will help us continue to provide support and resources to the TGCT Community.

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