What's new?

TGCT Support publishes pediatric study


We published a pediatric-specific analysis using patient registry data from the TGCT Support Registry.

The article is entitled "Pediatric patients with tenosynovial giant cell tumor: real-world evidence from an observational registry" and can be found here.

A patient version has been created, along with several translated versions. We are so grateful for everyone's contribution that made this possible!

Expanded podcast to apple podcasts and third episode released

Second podcast episode drops!

we started a podcast to elevate patient voices!

TGCT Support ctos abstract on tgct and socioeconomic risk factors was published in esmo rare cancers journal

TGCT Support presented a poster and presentation at ctos

check out our new faq and cookbook

TGCT Support collaborates with Leicester orthopedic team in the uk

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Congratulations to the Leicester orthopedic team on their presentation of knee TGCT surgical approaches! Dr Ashford and colleagues collaborated with TGCT Support to deliver a patient centric and medically rigorous proposal on a surgical paradigm for TGCT of the knee. We are honored to contribute to several efforts
to improve care for patients with TGCT in the UK, including this one! 

                                                                             Check it out ----->

WE PRESENTED AT ASCO

The American Society of Clinical Oncology (ASCO)'s annual meeting is largest conference in the world. We presented registry data on pediatric patients with TGCT and we could not be prouder to demonstrate the unmet need for advancements in the management of TGCT for these young patients! Check it out!

WE PUBLISHED OUR FIRST MEDICAL JOURNAL ARTICLE

2024 in Review

Check out our collaboration for a cme course

TGCT Support collaborated with PeerView to create a course for healthcare providers to learn more about the management of TGCT. Check it out and send to your providers: ​

Highlights from CTOS 2024

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TGCT Support assisted in the dissemination of the results of the Vimseltinib MOTION trial,

​check it out


Watch our TGCT Day of Learning that occurred on July 27th, 2024 at 9:30-2:30pm MT in Aurora, Colorado
TGCT Day of Learning Conference was hosted in Rome, Italy! TGCT Support is going abroad for a chance to have a day of learning on April 20th, 2024! 

The half-day event will take place at 2-5pm CET at Precise House Mantegna Roma (Vía Andrea Mantegna, 130
00147, Rome, Italy). The event is free to patients and their families. 

TGCT Support submits a poster for the advocacy lounge at CTOS 
TGCT was featured in an article written by Dr Sydney Stern about how patients can get involved with research
Check out our upcoming TDOL on Sept 23rd, 2023 at 10-2:20pm ET in Columbus, Ohio at Ohio State University (James Cancer Center)  
Watch our "Best Clinical Management of TGCT as per the community of experts" webinar that goes through the latest consensus paper!
Check out our latest TGCT Clinical Trials Webinar
Watch the TGCT Session at SPAN 2023 Conference
2-Part Mental Health Series for Navigating Chronic Illness to Managing Chronic Pain and Symptoms
Best clinical management of tenosynovial giant cell tumour (TGCT): a consensus paper from the community of experts
TGCT Support is a global organization. Aligned with our mission, we have expanded our reach by assisting a French community of patients become established as an association. We are inspired by these patients and hope to continue to work together to bring resources to patients globally!
Check out all the CTOS 2022 Posters for TGCT
Expert Q&A Webinar Live, here!
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                     TGCT Support Announces its summer webinars! View our TGCT                             Expert Q&A flyer here and our Surgery and Pain Management                               flyer here
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TGCT Support supports patients with video for Rare Disease Day

Watch here 
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First Western US to open Phase 3 for Vimseltinib 

​Check it out here
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Director of Giant Cell Tumor Programs at TGCT Support, Sydney Stern, gives an overview of TGCT for CheckRare

​                       Check it out!
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AmMax Bio announces positive results during AMB-05X Phase 2 trial of local injections to the knee

                           Learn more here
DCC-3014 (Vimseltinib) launches its Phase 3 Trial

Learn more here
TGCT Support Launches Support Groups!

Check it out here
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National Organization for Rare Diseases (NORD) updates their TGCT page
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Check it out here
AmMax Bio Announces First Patient Enrolled in Phase 2 Trial of AMB-05X for Tenosynovial Giant Cell Tumor (TGCT)

Read more here
CancerCare® Publishes White Paper Highlighting Gaps in Education and Care for Patients with Tenosynovial Giant Cell Tumors (TGCT)

Read more here
DCC-3014 (vimseltinib) shows promise as a new selective treatment for TGCT

Read more here
New Clinical Trial from AmMax Bio for an intra-articular joint injection for TGCT patients

Read more here

TGCT SUPPORT IS A PROGRAM OF THE LIFE RAFT GROUP

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155 US Highway 46, Suite 202                      Wayne, NJ 07470                      [email protected]