Events

upcoming events

A TDOL is a free day event to help TGCT patients and caregivers learn more about this rare disease, find support, and enhance their knowledge base to help them navigate their journey.

We are hosting a TDOL on July 11, 2026 from 9:00 - 3:30 PM in Nashville TN! Experts from Vanderbilt will be presenting.

Check out the agenda and register below.

Previous events

A TDOL is a free half day event to help TGCT patients and caregivers learn more about this rare disease, find support, and enhance their knowledge base to help them navigate their journey.

TGCT Support has a simple purpose: to improve treatment of a rare disease — TGCT — and to help those living with it. To do this, TGCT Support focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the quality of life of TGCT patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of TGCT advocates and the global health and research environment.

WATCH IT HERE

Thank you to our Sponsors: Biologics by McKesson, Deciphera
Pharmaceutics (a member of Ono Pharma), Daiichi-Sankyo, and
EMD Serono

We published our first medical peer-to-peer article!!

COME CELEBRATE WITH US AND HERE ALL ABOUT YOUR DATA!

Watch here

Watch now‼️‼️ Drs Riedel and Tap discuss how they will navigate multiple medications approved in the US and various clinical trial options for TGCT. They go through key considerations for both patients and providers alike on how to make shared decisions regarding what drug to pick and when!

Watch Now!

Watch Now‼️‼️

GET CELL-Y WITH IT with Dr Clay, the Director of Bone & Soft Tissue Pathology at University of Colorado. Dr Clay will be discussing the biology of TGCT and the intricate nature of identifying TGCT for diagnosis. He will discuss how pathologists diagnose TGCT and what the differences in subtyping of diffuse vs localized disease by pathology compared to radiology.

WATCH NOW

Watch here

Dr Tinoco will walk us all through the recent advancements in medications to treat TGCT, including the expected approval of a new treatment in February and long-term safety data for the approved medication in the United States. He’ll go through all the current clinical trials and answer all your questions!

TGCT typically impacts patients who are 20-50 years of age. However, TGCT can impact anyone at any age. While treatment strategies are being developed and we are learning more about this disease, much is still unknown about treating TGCT in pediatric patients.

Drs Scharschmidt and Gupta will discuss all the uncertainties related to treating pediatrics with TGCT and what is currently known. They will also answer any questions you may have!

Watch here

Navigating insurance webinar

Watch it now

TGCT Day of learning (tdol) in colorado

We have scheduled our third TDOL for July 27th, 2024 at 9:30-2:30pm MT in Aurora, CO at UC Health Anschutz Cancer Center!

A TDOL is a free half day event to help TGCT patients and caregivers learn more about this rare disease, find support, and enhance their knowledge base to help them navigate their journey.

TGCT Support has a simple purpose: to improve treatment of a rare disease — TGCT — and to help those living with it. To do this, TGCT Support focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the quality of life of TGCT patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of TGCT advocates and the global health and research environment.
During this conference, Dr Stern will cover background biology and history of the disease, Dr Michael Clay will cover pathology, Dr Breelyn Wilky will cover medications and clinical trials, and Dr Nathan Donaldson will cover Pre-Operative Treatment and Surgical Management of the disease. Lastly, we will have a roundtable discussion with experts. Lunch is included and the event is FREE to anyone who wants to meet and learn.

Thank you to our sponsors, Daiichi Sankyo, Deciphera, Biologics, EMD Serono and SynOx.

Watch it here

TGCT DAY of learning at spagn annual conference

TGCT Support is collaborating with SPAGN to host a TGCT Day of Learning Conference on April 20th, 2024 at the Precise House Mantegna Roma (Vía Andrea Mantegna, 130 00147, Rome, Italy)!

The event is free to patients and their family.

For any questions, email [email protected]

Watch now

TGCT Day of Learning (TDOL) AT OSU

We have scheduled our second TDOL for Sept 23rd, 2023 at 10-2:20pm ET in Columbus, Ohio at OSU!

A TDOL is a free half day event to help TGCT patients and caregivers learn more about this rare disease, find support, and enhance their knowledge base to help them navigate their journey.

TGCT Support has a simple purpose: to improve treatment of a rare disease — TGCT — and to help those living with it. To do this, TGCT Support focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the quality of life of TGCT patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of TGCT advocates and the global health and research environment.
During this conference, Dr Stern will cover background biology and history of the disease, Dr Burgess from UPMC will cover Imatinib and the Turalio trials, Dr Tinoco from OSU will cover the trial therapies, and Dr Scharschmidt from Children's National Hospital will cover Pre-Operative Treatment and Surgical Management of the disease. Lunch is included and the event is FREE to anyone who wants to meet and learn.

Thank you to our sponsors, Abbisko, Daiichi Sankyo, and Deciphera, that made it possible

Watch the Conference here

TGCT day of learning (TDOL)

Our first ever TGCT Days of Learning (TDOL) conference was on Sept 21st, 2022 from 4-8pm in NYC.

A TDOL is a free half day event to help TGCT patients and caregivers learn more about this rare disease, find support, and enhance their knowledge base to help them navigate their journey.

TGCT Support has a simple purpose: to improve treatment of a rare disease — TGCT — and to help those living with it. To do this, TGCT Support focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the quality of life of TGCT patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of TGCT advocates and the global health and research environment.
During this conference, Dr Stern will cover background biology and history of the disease, Dr Schwartz from Columbia Presbyterian Hospital will cover systemic therapies and clinical trials, and Dr Prince and Healey from MSKCC will cover Pre-Operative Treatment and Surgical Management of the disease. Dinner is included and the event is FREE to anyone who wants to meet and learn.

For those that cannot come, do not worry! This will be the first of many.

Thank you to our sponsors, Daiichi Sankyo, SynOx Therapeutics and Deciphera, that made it possible